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    <title>Le Partenariat de soin avec le patient</title>
    <description>Le Partenariat de soin avec le patient: latest publications</description>
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      <url>https://pspa.episciences.org/logos/logo-pspa-small.svg</url>
      <title>Le Partenariat de soin avec le patient</title>
      <link>https://pspa.episciences.org</link>
    </image>
    <pubDate>Tue, 02 Jun 2026 23:57:12 +0000</pubDate>
    <generator>Episciences</generator>
    <link>https://pspa.episciences.org</link>
    <author>Le Partenariat de soin avec le patient</author>
    <dc:creator>Le Partenariat de soin avec le patient</dc:creator>
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    <item>
      <title>IS IT APPROPRIATE TO USE PATIENT EDUCATORS IN THE OSCE?</title>
      <description><![CDATA[Introduction : As part of the reform of the second cycle of medical studies, a collaborative development process was implemented. Methods: This was initiated with patient partners, medical students and clinical tutors. The central idea is a consultation between students and patient partners within each OSCE rotation, followed by a systematic debriefing session, thereby making the OSCE rotations formative. Results: This initiative has been institutionalised since 2022 in a medical school as a compulsory formative assessment at the end of the general practice clinical rotation. Discussion: It enables a rethinking of the role of these OSCE within the learning process offered to postgraduate medical students by integrating a progressive approach specific to pedagogical processes into the competency-based approach. Conclusion: Both students and supervisors, doctors and patients alike, perceive the benefits, which invites reflection on possible adjustments to this reform of postgraduate medical education. This is what this article aims to shed light on.]]></description>
      <pubDate>Wed, 22 Apr 2026 15:43:03 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.17960</link>
      <guid>https://doi.org/10.46298/pspa.17960</guid>
      <author>Flora, Luigi</author>
      <author>Pouillon, Maud</author>
      <author>Guillot, Nicolas</author>
      <author>Fauré, Stéphanie</author>
      <author>Benattar, Jean- Michel</author>
      <author>Pop, Calin</author>
      <author>Ravot, Marielle</author>
      <author>Bouchez, Tiphanie</author>
      <author>Rubinstein, Sébastien</author>
      <author>Filali, Sarah</author>
      <author>Rousselin, Laurence</author>
      <author>Gaspérini, Fabrice</author>
      <author>Pons, Marc</author>
      <author>Munck, Stéphane</author>
      <author>Balez, Eric</author>
      <author>Darmon, David</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[medical clerkship]]></category>
      <category><![CDATA[patient trainer]]></category>
      <category><![CDATA[formative OSCE]]></category>
      <category><![CDATA[OSCE]]></category>
      <category><![CDATA[patient partnership]]></category>
      <category><![CDATA[medical pedagogy]]></category>
      <category><![CDATA[externat de médecine générale]]></category>
      <category><![CDATA[patient formateur]]></category>
      <category><![CDATA[ECOS formatif]]></category>
      <category><![CDATA[ECOS]]></category>
      <category><![CDATA[partenariat patient]]></category>
      <category><![CDATA[pédagogie médicale]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <category><![CDATA[[SHS.EDU]Humanities and Social Sciences/Education]]></category>
      <dc:creator>Flora, Luigi</dc:creator>
      <dc:creator>Pouillon, Maud</dc:creator>
      <dc:creator>Guillot, Nicolas</dc:creator>
      <dc:creator>Fauré, Stéphanie</dc:creator>
      <dc:creator>Benattar, Jean- Michel</dc:creator>
      <dc:creator>Pop, Calin</dc:creator>
      <dc:creator>Ravot, Marielle</dc:creator>
      <dc:creator>Bouchez, Tiphanie</dc:creator>
      <dc:creator>Rubinstein, Sébastien</dc:creator>
      <dc:creator>Filali, Sarah</dc:creator>
      <dc:creator>Rousselin, Laurence</dc:creator>
      <dc:creator>Gaspérini, Fabrice</dc:creator>
      <dc:creator>Pons, Marc</dc:creator>
      <dc:creator>Munck, Stéphane</dc:creator>
      <dc:creator>Balez, Eric</dc:creator>
      <dc:creator>Darmon, David</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Teaching medicine with patients as partners : A mapping of patient involvement in a family medicine residency program</title>
      <description><![CDATA[Background: Across Canada and around the world, an increasing number of residency programs are seeking to involve patient partners in their academic curricula, yet few detailed examples exist at the postgraduate level.Objective: To describe an innovative initiative integrating patient partners into the Family Medicine Residency Program at the Université de Montréal (UdeM), grounded in the Montreal Model of patient partnership.Description: In this program, which welcomes approximately 350 residents, patients are involved at multiple levels: governance (Educational Council, new site development committee, resident orientation), assessment (admissions committee, competency evaluation committee, direct feedback), continuing education (communication workshops, participation in mental health clinical teams, quality improvement projects), and teaching activities (co-developed and co-facilitated courses). These initiatives are supported by structured supervision from the Office of Patient Partnership, ensuring methodological rigor and alignment with the primary care context.Results: This approach, recognized as exemplary by the joint CFPC/CMQ accreditation, offers a transferable model grounded in the principles of co-construction and the valuing of experiential knowledge.Conclusion: This description provides concrete examples and actionable insights for programs seeking to sustainably integrate patients into postgraduate curricula and to contribute to the democratization of knowledge in health care.]]></description>
      <pubDate>Wed, 22 Apr 2026 08:45:01 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.16927</link>
      <guid>https://doi.org/10.46298/pspa.16927</guid>
      <author>Codsi, Marie-Pierre</author>
      <author>Riendeau, Tania</author>
      <author>Descoteaux, Annie</author>
      <author>Germain, Isabelle</author>
      <author>Leclaire, Marie</author>
      <author>Layani, Géraldine</author>
      <author>Karazivan, Philippe</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[social accountability]]></category>
      <category><![CDATA[medical education]]></category>
      <category><![CDATA[patient partner]]></category>
      <category><![CDATA[family medicine]]></category>
      <category><![CDATA[Responsabilité sociale]]></category>
      <category><![CDATA[éducation médicale]]></category>
      <category><![CDATA[Patient partenaire]]></category>
      <category><![CDATA[Programme de résidence]]></category>
      <category><![CDATA[Médecine de famille]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Codsi, Marie-Pierre</dc:creator>
      <dc:creator>Riendeau, Tania</dc:creator>
      <dc:creator>Descoteaux, Annie</dc:creator>
      <dc:creator>Germain, Isabelle</dc:creator>
      <dc:creator>Leclaire, Marie</dc:creator>
      <dc:creator>Layani, Géraldine</dc:creator>
      <dc:creator>Karazivan, Philippe</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Retour d’expérience d’un enseignement pédagogique innovant en tandem de partenariat orthophoniste-patient en formation initiale d’études en santé</title>
      <description><![CDATA[This study presents an innovative educational initiative that integrates a patient partner into the initial training of speech-language pathology students at the Faculty of Medicine of the Université Côte d'Azur. Over a three-year period, students were trained in patient partnership; then, in their first year of master's studies (M1), a teaching program co-designed and co-led by a speech-language pathologist instructor and a patient partner was developed within a cross-disciplinary unit dedicated to communication and professionalism. A satisfaction survey (n = 16) assessed the impact of this initiative on clinical positioning, communication skills, and understanding of patient partnership. The results show encouraging outcomes among the students: a shift in clinical perspective (70%), greater consideration of the patient's experience (65%), and an anticipated improvement in communication (77%). They highlight the authenticity, complementarity, and added value of the teaching partnership. Despite uncertainties regarding the future integration of patient partners into clinical practice, the experience appears promising for strengthening reflexivity, ethical vigilance, and collaborative skills. These results support the relevance of integrating patient partners into health education programs to promote a more relational, ethical, and partnership-based approach to care.]]></description>
      <pubDate>Wed, 22 Apr 2026 08:43:08 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.17843</link>
      <guid>https://doi.org/10.46298/pspa.17843</guid>
      <author>Payne, Magali</author>
      <author>Haas, Frédérique</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[partnership teacher-patient tandem]]></category>
      <category><![CDATA[pedagogy]]></category>
      <category><![CDATA[patient partner]]></category>
      <category><![CDATA[orthophonie.]]></category>
      <category><![CDATA[tandem partenariat enseignant patient partenaire orthophoniste]]></category>
      <category><![CDATA[pédagogie]]></category>
      <category><![CDATA[patient partenaire]]></category>
      <category><![CDATA[[SCCO]Cognitive science]]></category>
      <dc:creator>Payne, Magali</dc:creator>
      <dc:creator>Haas, Frédérique</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Elements of understanding new forms of care: report on the experience of doctor-patient partnership tandems in clinics</title>
      <description><![CDATA[Since 2022, an academic organisation offering an Art of Care in partnership with patients and the public in a systemic dimension (Teaching, cure and care, health system Research and Popular Education) has been accompanying new care practices. This article sheds light on one of these new clinical practices, that of doctor-patient partnership tandems in a clinical setting. According to the authors, who come from two different countries, this insight into care partnership tandems developed both in primary care and in health care establishments makes it possible to provide elements of relevance for this new type of practice and to put forward an initial hypothesis of the context needed to scale up these new figures involved in care.]]></description>
      <pubDate>Mon, 20 Oct 2025 11:54:57 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14651</link>
      <guid>https://doi.org/10.46298/pspa.14651</guid>
      <author>Flora, Luigi</author>
      <author>Fernandez, Nicolas</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[Health system]]></category>
      <category><![CDATA[Art du Soin]]></category>
      <category><![CDATA[tandem de partenariat]]></category>
      <category><![CDATA[partenariat patient]]></category>
      <category><![CDATA[hospital care and cure]]></category>
      <category><![CDATA[primary health]]></category>
      <category><![CDATA[clinic]]></category>
      <category><![CDATA[partnership tandem]]></category>
      <category><![CDATA[Art of Care]]></category>
      <category><![CDATA[soins hospitalier patient partnership]]></category>
      <category><![CDATA[soins primaires]]></category>
      <category><![CDATA[clinique]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <category><![CDATA[[SDV.MHEP]Life Sciences [q-bio]/Human health and pathology]]></category>
      <dc:creator>Flora, Luigi</dc:creator>
      <dc:creator>Fernandez, Nicolas</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Topics covered in the magazine “Care Partnership with the Patient - Analyses (PSPA):A lexical analysis of the first 30 articles published (2020-2024)</title>
      <description><![CDATA[Background and Objective: This article analyzes the themes of the first thirty articles published in the journal "Le Partenariat de Soin avec le Patient - Analyses" (PSPA) between 2020 and 2024. This journal highlights patient knowledge in complementarity with that of healthcare professionals, focusing on partnership practices in the fields of care, research, and training. The study aimed to classify the themes based on their lexical specificities and assess their links with the characteristics of the authors (geographical or disciplinary origins). Methods and Results: The IRaMuTeQ software was used to identify five thematic classes: (1) The relationship with the physician, (2) Confrontation and actions taken, (3) Project involvement, (4) Co-construction and representations, (5) Training and peer support. The words "patient," "health," "care," and "partnership" are central, while discriminating words helped reveal geographical and disciplinary specificities. Conclusion: This analysis highlights the major themes addressed in the PSPA journal and provides a basis for future comparisons with other more or less specialized journals. It represents a first step towards an observatory of thematic productions on care partnership.]]></description>
      <pubDate>Mon, 20 Oct 2025 11:19:24 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.15089</link>
      <guid>https://doi.org/10.46298/pspa.15089</guid>
      <author>Las Vergnas, Olivier</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[patient partnership]]></category>
      <category><![CDATA[PSPA journal]]></category>
      <category><![CDATA[lexical analysis]]></category>
      <category><![CDATA[bibliometrics]]></category>
      <category><![CDATA[partenariat patient]]></category>
      <category><![CDATA[bibliométrie]]></category>
      <category><![CDATA[analyse lexicale]]></category>
      <category><![CDATA[revue PSPA]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <category><![CDATA[[SCCO]Cognitive science]]></category>
      <category><![CDATA[[SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologie]]></category>
      <category><![CDATA[[SHS.EDU]Humanities and Social Sciences/Education]]></category>
      <dc:creator>Las Vergnas, Olivier</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Patient partnership and new technologies: towards improved medical care?</title>
      <description><![CDATA[New technologies are reshaping society and the healthcare system. In this article, we investigate the implications of e-health, artificial intelligence and health platforms for patient engagement and interaction with healthcare providers. Through a matrix analysis, the various strengths and opportunities, as well as weaknesses and threats, arising from these new technologies and impacting on the patient partnership, are analyzed. The integration of digital tools must be a driver of patient empowerment, without altering the care relationship or the personalization of medical decisions. Appropriate regulation improved digital literacy and accessibility of solutions adapted to the different actors seem to be a necessary compromise for developing a well-balanced and ethically acceptable patient partnership in the age of digital healthcare.]]></description>
      <pubDate>Mon, 20 Oct 2025 11:18:30 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.15685</link>
      <guid>https://doi.org/10.46298/pspa.15685</guid>
      <author>Claessens, Arthur</author>
      <author>Verkest, Emmanuelle</author>
      <author>Erbstein, Jean-Jacques</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[Patient partnership]]></category>
      <category><![CDATA[shared decision-making]]></category>
      <category><![CDATA[artificial intelligence]]></category>
      <category><![CDATA[e-health]]></category>
      <category><![CDATA[Patient partenaire]]></category>
      <category><![CDATA[empowerment]]></category>
      <category><![CDATA[e-santé]]></category>
      <category><![CDATA[intelligence artificielle]]></category>
      <category><![CDATA[décision partagée]]></category>
      <category><![CDATA[MESH: Patient partnership]]></category>
      <category><![CDATA[MESH: empowerment]]></category>
      <category><![CDATA[MESH: e-health]]></category>
      <category><![CDATA[MESH: artificial intelligence]]></category>
      <category><![CDATA[MESH: shared decision-making]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Claessens, Arthur</dc:creator>
      <dc:creator>Verkest, Emmanuelle</dc:creator>
      <dc:creator>Erbstein, Jean-Jacques</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Towards effective patient participation in medical education: a report on French Ministry of Health’s recommendations</title>
      <description><![CDATA[In a context of increasing patient engagement in the French health system, the patient participation in medical education was encouraged in 2019 through a law. However, in the absence of an implementation framework, the deployment of this participation is encountering various obstacles. The French Ministry of Health has therefore launched a project to define benchmarks and identify levers to encourage its effective implementation. Under the guidance of a steering committee comprising the stakeholders, a review of the literature, several surveys and hearings of various involved players were carried out. This work resulted in 23 recommendations, covering reinforcement of patient engagement, recruitment and accompaniment of patients, employment framework and remuneration, and support structures. To enable these practices to be widely disseminated, we need to continue the work already underway to develop an environment and framework suitable for their deployment.]]></description>
      <pubDate>Thu, 18 Jul 2024 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14187</link>
      <guid>https://doi.org/10.46298/pspa.14187</guid>
      <author>Thomas, Bérenger</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[patient engagement]]></category>
      <category><![CDATA[patient partnership]]></category>
      <category><![CDATA[medical education]]></category>
      <category><![CDATA[physician]]></category>
      <category><![CDATA[patient partner]]></category>
      <category><![CDATA[recommendations]]></category>
      <category><![CDATA[partenariat patient]]></category>
      <category><![CDATA[éducation médicale]]></category>
      <category><![CDATA[formation initiale]]></category>
      <category><![CDATA[médecin]]></category>
      <category><![CDATA[patient partenaire]]></category>
      <category><![CDATA[recommandations]]></category>
      <category><![CDATA[[SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologie]]></category>
      <dc:creator>Thomas, Bérenger</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Implementation of an experimental scheme in Brittany to secure the patient's commitment to the ETP partnership, with regard to his status and the preservation of his social rights</title>
      <description><![CDATA[In its recommendation to "support and encourage the commitment of users in the social, medico-social and health sectors", the Haute Autorité de Santé (French National Authority for Health) states that "provision should be made for compensation or remuneration for those concerned who make a commitment on behalf of others and to the quality of care and support". Planning: ARS Bretagne, which is supporting this commitment by patients through experiments and the allocation of funding, "has commissioned a working group of patient partners and professionals from 2019 to support the partnership between patients, carers and healthcare professionals in TVE and to define the needs. The principle of remunerating patient partners involved in TVE has been established, subject to the condition that there is no impact on their social entitlements (disability pension, benefits, etc.). In order to ensure that their social security entitlements are maintained if they return to work, some patients who are actively involved with social security bodies (CPAM, MDPH, CAF, Pôle emploi, Cap emploi) have received different or even contradictory responses, depending on the people they talk to and the bodies involved, leaving them in a state of uncertainty and reinforcing their feeling of vulnerability, which has led them to give up getting involved. This project is in response to a call for tenders issued in 2022, with a view to making patient involvement administratively secure. With the creation and free availability of an interactive digital tool since March 2023, partner patients can assess the feasibility of a paid commitment in terms of maintaining their social rights. Training for local resource representatives on the issues raised will begin in January 2024, and will complement this tool with a support approach for partner patients who feel they need it.Outlook: An assessment of this experimental project will be carried out throughout its lifetime to ensure that it meets the needs of partner patients, the reality of the area and the desired partnership.]]></description>
      <pubDate>Thu, 18 Jul 2024 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14188</link>
      <guid>https://doi.org/10.46298/pspa.14188</guid>
      <author>Poasevara, Laure</author>
      <author>Larget, Amélie</author>
      <author>Le Ridant, Maud</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[Reward]]></category>
      <category><![CDATA[Commitment]]></category>
      <category><![CDATA[Patient partners]]></category>
      <category><![CDATA[Patient Therapeutic Education]]></category>
      <category><![CDATA[Social rights]]></category>
      <category><![CDATA[engagement]]></category>
      <category><![CDATA[patient(e)s partenaires]]></category>
      <category><![CDATA[éducation thérapeutique du patient]]></category>
      <category><![CDATA[droits sociaux]]></category>
      <category><![CDATA[rétribution]]></category>
      <category><![CDATA[[SDV.EE.SANT]Life Sciences [q-bio]/Ecology, environment/Health]]></category>
      <dc:creator>Poasevara, Laure</dc:creator>
      <dc:creator>Larget, Amélie</dc:creator>
      <dc:creator>Le Ridant, Maud</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Scape surveys in Switzerland to gather patients’ opinions and encourage patient-researcher partnerships</title>
      <description><![CDATA[Collecting patient opinions is fundamental to personalizing care, promoting shared decision-making, and fostering patient engagement in care. The systematic, large-scale collection of these opinions also enables to evaluate the impact of care on health and the extent to which care is responding to people’s needs. The SCAPE surveys, introduced in Switzerland in 2018, aim to systematically collect and analyze the experiences of cancer patients, providing essential data for improving the quality of oncology care. An important feature of the SACPE surveys is the involvement of patient partners in research right from the start. Throughout the partnership, their experiential knowledge was fully recognized, enriching the quality, relevance, and value of SCAPE. The quality of their engagement will be assessed to appreciate their work and valuable involvement, and to draw lessons to guide future projects aimed at improving the quality of care, in partnership with patients.]]></description>
      <pubDate>Thu, 18 Jul 2024 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14189</link>
      <guid>https://doi.org/10.46298/pspa.14189</guid>
      <author>Rezzonico, Valérie</author>
      <author>Berrut, Sylvan</author>
      <author>Bienvenu, Christine</author>
      <author>Fiscalini, Aldo</author>
      <author>Ganz-Blättler, Ursula</author>
      <author>Eicher, Manuela</author>
      <author>Peytremann-Bridevaux, Isabelle</author>
      <author>Arditi, Chantal</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[survey]]></category>
      <category><![CDATA[Patient and public involvement]]></category>
      <category><![CDATA[patient partnership]]></category>
      <category><![CDATA[oncology]]></category>
      <category><![CDATA[research]]></category>
      <category><![CDATA[enquête]]></category>
      <category><![CDATA[partenariat patient]]></category>
      <category><![CDATA[oncologie]]></category>
      <category><![CDATA[[SDV.EE.SANT]Life Sciences [q-bio]/Ecology, environment/Health]]></category>
      <dc:creator>Rezzonico, Valérie</dc:creator>
      <dc:creator>Berrut, Sylvan</dc:creator>
      <dc:creator>Bienvenu, Christine</dc:creator>
      <dc:creator>Fiscalini, Aldo</dc:creator>
      <dc:creator>Ganz-Blättler, Ursula</dc:creator>
      <dc:creator>Eicher, Manuela</dc:creator>
      <dc:creator>Peytremann-Bridevaux, Isabelle</dc:creator>
      <dc:creator>Arditi, Chantal</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Who are the patient partners trained by the Art of Care in partnership with the patient?</title>
      <description><![CDATA[This article aims to present the first results of a study regarding the graduates of the DU "Art du Soin en Partenariat avec le Patient" since its creation. It primarily deals with the “Partnership patient” part of the survey and intends to report on how they experiment their assignment, how they cope with the various problems they face in their practice. This work also emphasizes their commitment and motivations which enable them to keep on with their work.]]></description>
      <pubDate>Thu, 18 Jul 2024 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14190</link>
      <guid>https://doi.org/10.46298/pspa.14190</guid>
      <author>Liguori, Florence</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[Formation Patient Partners]]></category>
      <category><![CDATA[patient partnership]]></category>
      <category><![CDATA[Art of Care in partnership with patients]]></category>
      <category><![CDATA[Healthcare professionals training]]></category>
      <category><![CDATA[patients partenaires]]></category>
      <category><![CDATA[partenariat patient]]></category>
      <category><![CDATA[Art du soin en partenariat avec les patients]]></category>
      <category><![CDATA[formation des professionnels de santé]]></category>
      <category><![CDATA[[SDV.EE.SANT]Life Sciences [q-bio]/Ecology, environment/Health]]></category>
      <dc:creator>Liguori, Florence</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Nothing about us without us: exploratory and participatory studies of voice-hearing groups in France</title>
      <description><![CDATA[Hearing voices is a human experience that no longer belongs solely to the fields of psychiatry and psychology. Over the past forty years, the perception of this phenomenon has been gradually transformed for mental health professionals, classification manuals and voice hearers themselves. This evolution is underpinned by the emergence of an international movement, the Hearing Voices Movement, made up of voice-hearers and, in some cases, users or former users of psychiatry. With the aim of proposing new forms of support for these experiences, a number of groups aimed at voice hearers have gradually emerged. Our two exploratory studies, based on questionnaires created in collaboration with voice hearers and group facilitators, examine the therapeutic evaluation of these settings, as well as mental health professionals' perceptions of them.]]></description>
      <pubDate>Tue, 18 Jul 2023 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14159</link>
      <guid>https://doi.org/10.46298/pspa.14159</guid>
      <author>Evrard, Renaud</author>
      <author>Braun, Arthur</author>
      <author>Raffort, Clémentine</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[voice-hearers]]></category>
      <category><![CDATA[voice-hearing group]]></category>
      <category><![CDATA[therapeutic evaluation]]></category>
      <category><![CDATA[auditive-verbal hallucinations]]></category>
      <category><![CDATA[social representations]]></category>
      <category><![CDATA[participatory research]]></category>
      <category><![CDATA[entendeurs de voix]]></category>
      <category><![CDATA[groupe d'entendeurs de voix]]></category>
      <category><![CDATA[évaluation thérapeutique]]></category>
      <category><![CDATA[hallucinations acoustico-verbales]]></category>
      <category><![CDATA[représentations sociales]]></category>
      <category><![CDATA[recherche participative]]></category>
      <category><![CDATA[[SHS.PSY]Humanities and Social Sciences/Psychology]]></category>
      <category><![CDATA[[SDV.MHEP.PSM]Life Sciences [q-bio]/Human health and pathology/Psychiatrics and mental health]]></category>
      <dc:creator>Evrard, Renaud</dc:creator>
      <dc:creator>Braun, Arthur</dc:creator>
      <dc:creator>Raffort, Clémentine</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Oral health, early childhood and precariousness: an analysis of the barriers and levers to access to care through the experiences of families</title>
      <description><![CDATA[Oral health is a relevant issue in public health due to the frequency of oral diseases and their impacts on health, social and professional insertion. Most of these affections could be avoided with healthy behaviors and easier use of care. However, social inequalities in health and access to care are present from early childhood. Prevention actions and support in the care pathway adapted to vulnerable populations are necessary in order to improve partnership with families, prevention and access to care from early childhood. This study aims to explore the representations about oral health and oral care from parents of children aged from 1 to 6 years old identified as being in a precarious situation and living in Dijon and its conurbation.]]></description>
      <pubDate>Tue, 18 Jul 2023 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14160</link>
      <guid>https://doi.org/10.46298/pspa.14160</guid>
      <author>Vabre, Alice</author>
      <author>Millot, Isabelle</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[oral health]]></category>
      <category><![CDATA[precarity]]></category>
      <category><![CDATA[early childhood]]></category>
      <category><![CDATA[access to care]]></category>
      <category><![CDATA[prevention]]></category>
      <category><![CDATA[santé bucco-dentaire]]></category>
      <category><![CDATA[précarité]]></category>
      <category><![CDATA[petite enfance]]></category>
      <category><![CDATA[accès aux soins]]></category>
      <category><![CDATA[prévention]]></category>
      <category><![CDATA[MESH: santé, médecine, partenariat patient, patient partnership, health partnership, patient involvement,]]></category>
      <category><![CDATA[[SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologie]]></category>
      <dc:creator>Vabre, Alice</dc:creator>
      <dc:creator>Millot, Isabelle</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Awarding a medicine family thesis prize in partnership with patients partners : an experience of partnership approach</title>
      <description><![CDATA[This article describes how the procedures for awarding a thesis prize in family medicine were reorganized in a participatory approach in partnership with patients and training supervisors, in line with a social responsibility approach. It describes the initial procedures, how and why the selection process was modified, and discusses the contributions and issues that this has raised, before concluding with one of the results: the durability of this new way of awarding the thesis prize, a way of recognizing the quality of research carried out in family medicine theses and potentially of making this type of work more visible.]]></description>
      <pubDate>Tue, 18 Jul 2023 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14161</link>
      <guid>https://doi.org/10.46298/pspa.14161</guid>
      <author>Flora, Luigi</author>
      <author>Casta, Céline</author>
      <author>Munck, Stéphane</author>
      <author>Fauré, Stéphanie</author>
      <author>Gasperini, Fabrice</author>
      <author>Rubinstein, Sébastien</author>
      <author>Darmon, David</author>
      <author>Ravot, Marielle</author>
      <author>Bouchez, Tiphanie</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[family medicine]]></category>
      <category><![CDATA[thesis prize]]></category>
      <category><![CDATA[partnership approach]]></category>
      <category><![CDATA[patient partners]]></category>
      <category><![CDATA[social responsibility]]></category>
      <category><![CDATA[médecine générale]]></category>
      <category><![CDATA[prix de thèse]]></category>
      <category><![CDATA[approche partenariale]]></category>
      <category><![CDATA[patients partenaires]]></category>
      <category><![CDATA[responsabilité sociale]]></category>
      <category><![CDATA[MESH: santé, médecine, pédagogie médicale, sciences de la santé, partenariat patient, recherche participative, Health, medicine, partnership, partnership patient, participatory research, medical education, health sciences]]></category>
      <category><![CDATA[[SDV.MHEP]Life Sciences [q-bio]/Human health and pathology]]></category>
      <dc:creator>Flora, Luigi</dc:creator>
      <dc:creator>Casta, Céline</dc:creator>
      <dc:creator>Munck, Stéphane</dc:creator>
      <dc:creator>Fauré, Stéphanie</dc:creator>
      <dc:creator>Gasperini, Fabrice</dc:creator>
      <dc:creator>Rubinstein, Sébastien</dc:creator>
      <dc:creator>Darmon, David</dc:creator>
      <dc:creator>Ravot, Marielle</dc:creator>
      <dc:creator>Bouchez, Tiphanie</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Health Mediator/Peer and psycho-education in mental health: a meeting under the auspices of innovation in care</title>
      <description><![CDATA[This article deals with the psycho-educational approach mobilised in the programme initiated by the World Health Organisation (WHO) through the action carried out by the Collaborating Centre for Mental Health Europe with the Health Mediator/Air Mediator programme (MSP). The analysis is carried out by the author, who has been a Health/Pair Mediator since the beginning of this programme, based on his experience in this type of position. An approach deployed with patients and families. A form of partnership in mental health developed in France for more than a decade.]]></description>
      <pubDate>Fri, 06 Jan 2023 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14158</link>
      <guid>https://doi.org/10.46298/pspa.14158</guid>
      <author>Rubinstein, Sébastien</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[peer health mediator]]></category>
      <category><![CDATA[recovery]]></category>
      <category><![CDATA[psycho-education]]></category>
      <category><![CDATA[mental health]]></category>
      <category><![CDATA[profamily]]></category>
      <category><![CDATA[médiateur de santé pair]]></category>
      <category><![CDATA[rétablissement]]></category>
      <category><![CDATA[psychoéducation]]></category>
      <category><![CDATA[profamille]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Rubinstein, Sébastien</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>How is the reflexivity of patients considered by health professionals in the context of medical support?</title>
      <description><![CDATA[The interactions between sick people and health professionals, taking place within the framework of medical support, constituts a challenge for the health system. Indeed, more and more patient-centered approaches to care (cooperation, co-decision, coconstruction of the therapeutic project) are being promoted with the aim of offering greater autonomy to the latter. These new forms of cooperation in health are based, among other things, on the reflexive capacities shown by sick people. This investigation seeks to understand how health professionals consider the reflexivity of patients. The survey questionnaire used allowed the collection of data from 197 health professionals in the territories of Niamey (n=124) and Lille (n=73). Descriptive statistical analyses and Principal Component Analysis (PCA) were applied. The results showed two categories of approaches to care and representations of the reflexivity of patients made by health professionals. This is the paternalistic approach which is less interested in the reflexivity of patients and consists of unilateral and collegial modalities (characteristic of health professionals in Niamey) and the cooperative approach which is more interested in reflexivity patients and composed of bilateral and partnership modalities (characteristic of health professionals in Lille). This research has made it possible to characterize the representations that health professionals have of the reflexivity of patients. Although quite mixed, these representations can be improved in order to better take into account the reflexivity of patients.]]></description>
      <pubDate>Fri, 06 Jan 2023 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14156</link>
      <guid>https://doi.org/10.46298/pspa.14156</guid>
      <author>Abdou Oumarou, Mamane</author>
      <author>Las Vergnas, Olivier</author>
      <author>Messaadi, Nassir</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[patient reflexivity]]></category>
      <category><![CDATA[medical support]]></category>
      <category><![CDATA[care approaches]]></category>
      <category><![CDATA[réflexivité des malades]]></category>
      <category><![CDATA[accompagnement médical]]></category>
      <category><![CDATA[approches des soins]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Abdou Oumarou, Mamane</dc:creator>
      <dc:creator>Las Vergnas, Olivier</dc:creator>
      <dc:creator>Messaadi, Nassir</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Patient partner and transfer in care</title>
      <description><![CDATA[Carrier of a chronic disease and child psychiatrist, I get to know the movement of patient partners by seeking to testify to this double look at the heart of the system and care institutions. Starting from the initial desire to work on the caregiving potential of transfer in care relationships including body care, I worked on a master's thesis entitled "professionalization of partner patients". To do this after reading autobiographies of patients as preparatory work I met ten subjects who socialized their experiential knowledge of living with a chronic disease In their evolution towards professionalization, in addition to the experience of life with the disease, formation has an essential place for each subject encountered, as a possibility of meeting and taking a step back necessary for the installation of a reflection. At the institutional and administrative level, breaches are opening up in care structures, still marginally, or as an original experience. This in certain specialties, or as part of the practice and education of doctors and patients. The highlight of the partner patient's work is the symbolic posture he proposes to the patient, which the latter seizes or not. The transferential question arises in the relationship between patient and patient partner. It remains posed in the sick doctor relationship.]]></description>
      <pubDate>Fri, 06 Jan 2023 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14157</link>
      <guid>https://doi.org/10.46298/pspa.14157</guid>
      <author>Beer, Laurence</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[patient-partners]]></category>
      <category><![CDATA[placebo]]></category>
      <category><![CDATA[profession]]></category>
      <category><![CDATA[professionalization]]></category>
      <category><![CDATA[transfer]]></category>
      <category><![CDATA[living]]></category>
      <category><![CDATA[caregiver potential]]></category>
      <category><![CDATA[relationship]]></category>
      <category><![CDATA[care]]></category>
      <category><![CDATA[vocation]]></category>
      <category><![CDATA[patients-partenaires]]></category>
      <category><![CDATA[placebo]]></category>
      <category><![CDATA[profession]]></category>
      <category><![CDATA[professionnalisation]]></category>
      <category><![CDATA[transfert]]></category>
      <category><![CDATA[vivant]]></category>
      <category><![CDATA[potentialité soignante]]></category>
      <category><![CDATA[relation]]></category>
      <category><![CDATA[soin]]></category>
      <category><![CDATA[vocation]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Beer, Laurence</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Patient participation: challenges and issues of co-innovation in connected health</title>
      <description><![CDATA[With connected health and more particularly with the so-called "intelligent" technologies, the patient is faced with a real paradoxical injunction. On the one hand, the new solutions insistently solicit "patient work", making him not a simple user, but a true "co-creator of values" at the very heart of the system's operability. On the other hand, it is the opacity that is observed as the networks spread into the patients' living environments and as the solutions increase their computing power. While patient involvement is becoming an obvious necessity, I propose here to review some of the obstacles to participation in the specific field of current digital innovations. After having painted a sociological picture of the participating patient, I will also underline the interest of forging new categories in order to integrate the most ordinary digital and therapeutic competences and not only those of patient-experts. Finally, I intend to argue in favor of a dynamic and pragmatic framework of participation in co-innovation, a framework able to take into account the heterogeneity of experiential commitments and to resituate the patient's word within the interactional configurations of care (with the other parties involved) and of a shared quest for change.]]></description>
      <pubDate>Fri, 08 Jul 2022 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14154</link>
      <guid>https://doi.org/10.46298/pspa.14154</guid>
      <author>Mbanza, Edgar Charles</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[connected health]]></category>
      <category><![CDATA[innovation]]></category>
      <category><![CDATA[anthropo-sociology]]></category>
      <category><![CDATA[patient involvement]]></category>
      <category><![CDATA[digital skills]]></category>
      <category><![CDATA[santé connectée]]></category>
      <category><![CDATA[innovation]]></category>
      <category><![CDATA[anthropo-sociologie]]></category>
      <category><![CDATA[implication des patients]]></category>
      <category><![CDATA[compétences numériques]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Mbanza, Edgar Charles</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Innovating in partnership by creating a mobile application decision aid in the doctor-patient relationship: The ApiAppS research</title>
      <description><![CDATA[This article presents a research funded by the French National Research Agency (ANR) on the design of a prescription decision aid for mobile health applications for French general practitioners. This research, proposed by an inter-university consortium, has become an interdisciplinary development in partnership with patients. The article sheds light on both the phases constituted mobilizing in turn, the different researchers, professionals, citizens and patients, the modalities of partnership initiated as well as the results of the research.]]></description>
      <pubDate>Fri, 08 Jul 2022 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14155</link>
      <guid>https://doi.org/10.46298/pspa.14155</guid>
      <author>Flora, Luigi</author>
      <author>Darmon, David</author>
      <author>Darmoni, Stéfan J.</author>
      <author>Julien, Grosjean</author>
      <author>Simon, Christian</author>
      <author>Hassanaly, Parina</author>
      <author>Dufour, Jean-Charles</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[patient partnership]]></category>
      <category><![CDATA[interdisciplinary research]]></category>
      <category><![CDATA[autonomy]]></category>
      <category><![CDATA[decision support system]]></category>
      <category><![CDATA[mobile health]]></category>
      <category><![CDATA[système d’aide à la décision]]></category>
      <category><![CDATA[santé mobile]]></category>
      <category><![CDATA[partenariat patient]]></category>
      <category><![CDATA[recherche interdisciplinaire]]></category>
      <category><![CDATA[autonomie]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Flora, Luigi</dc:creator>
      <dc:creator>Darmon, David</dc:creator>
      <dc:creator>Darmoni, Stéfan J.</dc:creator>
      <dc:creator>Julien, Grosjean</dc:creator>
      <dc:creator>Simon, Christian</dc:creator>
      <dc:creator>Hassanaly, Parina</dc:creator>
      <dc:creator>Dufour, Jean-Charles</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Analyse réflexive du partenariat en santé à partir de mon expérience de patiente-partenaire: Constats, réflexions et recommandations</title>
      <description><![CDATA[In Switzerland, the context is relatively favorable to patient engagement, which encouraged me to get involved in the health care system. Since 2019, I have been able to experience partnership with various actors, different institutional structures, and at several levels. Despite a positive environment for the deployment of patient partnership, thanks to political, institutional, and financial incentives, the implementation of the new paradigm is facing many obstacles. Obstacles that I faced in my journey as a patient-partner. The following analysis is conducted based on my last three years of engagement as a patient partner in the health system.]]></description>
      <pubDate>Fri, 08 Jul 2022 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14153</link>
      <guid>https://doi.org/10.46298/pspa.14153</guid>
      <author>Laroussi-Libeault, Lisa</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[Health system]]></category>
      <category><![CDATA[Patient partnership]]></category>
      <category><![CDATA[experiential knowledge]]></category>
      <category><![CDATA[organizations]]></category>
      <category><![CDATA[teamwork]]></category>
      <category><![CDATA[training]]></category>
      <category><![CDATA[epistemic injustices]]></category>
      <category><![CDATA[Care]]></category>
      <category><![CDATA[partenariat en santé]]></category>
      <category><![CDATA[savoirs expérientiels]]></category>
      <category><![CDATA[travail d’équipe]]></category>
      <category><![CDATA[formations]]></category>
      <category><![CDATA[injustices épistémiques]]></category>
      <category><![CDATA[soin]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Laroussi-Libeault, Lisa</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>The contribution of patients to the development of professional knowledge on social networks</title>
      <description><![CDATA[As part of a doctoral research work questioning the contribution of social networks in the dissemination and development of professional nursing praxeologies, we questioned the role that patients play in professional exchanges on these devices. The place of patients in the medical landscape has changed since the 1980s thanks to their contribution to the development of knowledge about AIDS. The recognition oftheir skills is linked to this know-how to act developed in life situations where the disease prevails, unique and singular situations that question and bring out new knowledge. We rely on two theoretical frameworks: the anthropological theory of didactics (TAD) by Yves Chevallard, which takes both a didactic and anthropological perspective on the construction and dissemination of knowledge in society and the theory of communities of practice in Lave and Wenger. We therefore assume that by participating in the discussions, patients contribute to the development of nurses' knowledge. The research device is based on a mixed method: quantitative analysis by questionnaires, descriptive analysis on a corpus of texts extracted from exchanges on professional discussion groups, and qualitative analysis using content analysis. The results show that under certain conditions, the expression of patients in communications on social networks participate in the praxeological dynamic and therefore in an enrichment and development of knowledge in nursing and medical sciences, this making communication on networks. social, a place of production and discussion of knowledge.]]></description>
      <pubDate>Fri, 17 Dec 2021 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14150</link>
      <guid>https://doi.org/10.46298/pspa.14150</guid>
      <author>Pintus, Christine</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[praxeology]]></category>
      <category><![CDATA[communities of practice]]></category>
      <category><![CDATA[dialectic]]></category>
      <category><![CDATA[digital communication]]></category>
      <category><![CDATA[knowledge]]></category>
      <category><![CDATA[praxéologie]]></category>
      <category><![CDATA[communautés de pratique]]></category>
      <category><![CDATA[communication numérique]]></category>
      <category><![CDATA[dialectique- savoirs]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Pintus, Christine</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>A disparate and complex care pathway: assessments and impact on the quality of life of endometriosis patients</title>
      <description><![CDATA[Endometriosis is a complex, multifactorial disease with differential symptomatology, resulting in a long and tedious course of treatment where diagnostic erraticism reaches seven years. The often insufficiently coordinated management leads to a heterogeneous and non-optimal care pathway with a plurality of management and real therapeutic relationships. What about the reality of patients facing their doctor? Psychological processes that can explain quality of life and emotional experience will be examined in the light of Bruchon-Schweitzer's multifactorial integrative transactional model. For this purpose, a sample of 635 women aged 18 to 56 years completed a self-administered questionnaire assessing anxietydepressive symptomatology (HAD), shared decision making inherent in their care (SDM-Q9), body image (BIS) and quality of life (SF-36). Sociodemographic and biomedical questions were also asked. The results show that the participants took an average of 9.5 years to be diagnosed (SD = 6.8), and before that, 86.2% of them considered that their symptoms were of little or no importance to doctors. Today, 26.7% of them consider that they are not included in treatment decisions. This last variable is central since it is linked to levels of physical and mental quality of life and satisfaction with care. These findings lead us to think about a partnership between patients and doctors, with the aim of improving care.]]></description>
      <pubDate>Fri, 17 Dec 2021 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14151</link>
      <guid>https://doi.org/10.46298/pspa.14151</guid>
      <author>Guillemot, Cassandra</author>
      <author>Klinkenberg, Josephine</author>
      <author>Sordes, Florence</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[endometriosis]]></category>
      <category><![CDATA[partnership]]></category>
      <category><![CDATA[therapeutic decisions]]></category>
      <category><![CDATA[quality of life]]></category>
      <category><![CDATA[endométriose]]></category>
      <category><![CDATA[partenariat]]></category>
      <category><![CDATA[décisions thérapeutiques]]></category>
      <category><![CDATA[qualité de vie]]></category>
      <category><![CDATA[[SDV.EE.SANT]Life Sciences [q-bio]/Ecology, environment/Health]]></category>
      <dc:creator>Guillemot, Cassandra</dc:creator>
      <dc:creator>Klinkenberg, Josephine</dc:creator>
      <dc:creator>Sordes, Florence</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Implementation of the Shared Medical Record in access to care and support for migrants in general practice: representations of the main actors</title>
      <description><![CDATA[Context. The use of the Electronic health record (EHR) could facilitate the support of migrants but its implementation in France is laborious.Objective. Explore the representations on the use of the EHR among migrants, with migrants and general practitioners. Method. Exploratory qualitative study by semi-structured individual interviews and focus group, carried out between April and July 2020 with sampling in maximum variation. The two populations were recruited and analyzed independently until data saturation. An inductive analysis was performed with double blind coding. Results. Twelve participants were recruited from each population. The use of the EHR among migrants was considered by both populations as beneficial but difficult according to the specificities of migrant life. The EHR appears to be a practical solution to access migrant health data but the access should be simplified. Thus, the facilitating elements were the involvement of socialworkers and the interest in accessing the EHR upon the arrival of the migrants on the French territory. Opinions differed on the impact that the EHR would have on the doctor-patient relationship, which is specificamong migrants. Conclusion. The implementation of the EHR among migrants will not take place without the main actors. Their opinion is essential to avoid multiplying tools that are not adapted to the patients who need them the most. Involving healthcare users and primary care professionals is the only way to develop a partnership approach.]]></description>
      <pubDate>Fri, 17 Dec 2021 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14152</link>
      <guid>https://doi.org/10.46298/pspa.14152</guid>
      <author>Hélène, Dupety</author>
      <author>Eva, Hurpez</author>
      <author>Adriaan, Barbaroux</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[Electronic Health Records]]></category>
      <category><![CDATA[Refugees]]></category>
      <category><![CDATA[Patient Partnership]]></category>
      <category><![CDATA[General Practice]]></category>
      <category><![CDATA[Primary Care]]></category>
      <category><![CDATA[Qualitative Study]]></category>
      <category><![CDATA[dossier médical partagé]]></category>
      <category><![CDATA[migrants]]></category>
      <category><![CDATA[partenariat patient]]></category>
      <category><![CDATA[médecine générale]]></category>
      <category><![CDATA[soins primaires]]></category>
      <category><![CDATA[étude qualitative]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Hélène, Dupety</dc:creator>
      <dc:creator>Eva, Hurpez</dc:creator>
      <dc:creator>Adriaan, Barbaroux</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Being a peer health mediator, peer helper in France, the paradoxes of patient professionalization</title>
      <description><![CDATA[This article, written by one of the first qualified peer health mediators following the completion of the first training course initiated by the Collaborating Centre of the World Organisation of Mental Health Europe and the University Paris 8 Vincennes Saint-Denis, sheds light on the contributions, limitations and paradoxes of his new activities and their institutionnalisation in France with his critical gaze fed by 8 years of experience of this profession.]]></description>
      <pubDate>Sat, 01 May 2021 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14147</link>
      <guid>https://doi.org/10.46298/pspa.14147</guid>
      <author>Rubinstein, Sébastien</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[peer health mediator]]></category>
      <category><![CDATA[peer helper]]></category>
      <category><![CDATA[experiential knowledge]]></category>
      <category><![CDATA[recovery]]></category>
      <category><![CDATA[médiateur de santé pair]]></category>
      <category><![CDATA[pair aidant]]></category>
      <category><![CDATA[savoir expérientiel]]></category>
      <category><![CDATA[rétablissement]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Rubinstein, Sébastien</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>For a vision of care and cure in line with its time and its appropriation by the populations and their organizations</title>
      <description><![CDATA[This article sheds light on the current state of affairs and the challenges involved in the development of the patient care partnership, and more broadly the and more broadly, the cultural changes involved in engaging patients and populations in their care and health systems. It how this is organized in Quebec, the results obtained ten years after the emergence of the concept of care partnership with the with the patient and the implementation challenges it faces.]]></description>
      <pubDate>Sat, 01 May 2021 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14148</link>
      <guid>https://doi.org/10.46298/pspa.14148</guid>
      <author>Dumez, Vincent</author>
      <author>Flora, Luigi</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[knowledge patient]]></category>
      <category><![CDATA[experiential knowledge]]></category>
      <category><![CDATA[learning environment]]></category>
      <category><![CDATA[digital revolution]]></category>
      <category><![CDATA[patient partnership]]></category>
      <category><![CDATA[partenariat patient]]></category>
      <category><![CDATA[savoirs patients]]></category>
      <category><![CDATA[savoirs expérientiels]]></category>
      <category><![CDATA[environnement apprenant]]></category>
      <category><![CDATA[révolution numérique]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Dumez, Vincent</dc:creator>
      <dc:creator>Flora, Luigi</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Medical practice through changes in society and the emergence of patient care partnerships</title>
      <description><![CDATA[This article sheds light on the changes facing the practice of medicine, whether of a societal and technological, epidemiological and relational nature, and proposes a comprehensive approach to deal with them.]]></description>
      <pubDate>Sat, 01 May 2021 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14149</link>
      <guid>https://doi.org/10.46298/pspa.14149</guid>
      <author>Darmon, David</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[epidemiology]]></category>
      <category><![CDATA[general medicine]]></category>
      <category><![CDATA[patient partnership]]></category>
      <category><![CDATA[health professional-patient relationship]]></category>
      <category><![CDATA[health information quaternary prevention]]></category>
      <category><![CDATA[decisional change]]></category>
      <category><![CDATA[interprofessional collaboration]]></category>
      <category><![CDATA[épidémiologie]]></category>
      <category><![CDATA[médecine générale]]></category>
      <category><![CDATA[partenariat patient]]></category>
      <category><![CDATA[relation professionnel de santé-patient]]></category>
      <category><![CDATA[information en santé]]></category>
      <category><![CDATA[prévention quaternaire]]></category>
      <category><![CDATA[mutation décisionnelle]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Darmon, David</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>From patient trainer to peer health mediator, a story of training anchored in the city</title>
      <description><![CDATA[Information to the patient about his state of health and its possible consequences, as well as the need to request his consent to deliver the necessary care are recent achievements. For centuries, in the name of medical paternalism, doctors have preferred not to reveal to patients information relating to their state of health so as not to alarm them unnecessarily. Since then, the Kouchner law of March 4, 2002 seemed to “introduce a role reversal” (Gridel, 2002) by putting the consent of the person in the foreground andt he therapeutic necessity in the background. New care strategies have also emerged in response to societal expectations. The patient-healthcare professional partnership is one of them. His goal? Promote the expertise derived from the patient's experience of the disease and consider the latteras a full member—a partner—of the care team. Paris 8 University has supported this movement by setting up diploma courses. Its partnership with Côte d'Azur University is now a major new step with the application of an integrated patient-partnership model in the training of health professionals.]]></description>
      <pubDate>Sat, 01 May 2021 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14143</link>
      <guid>https://doi.org/10.46298/pspa.14143</guid>
      <author>Lunel, Alexandre</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[medical confidentiality]]></category>
      <category><![CDATA[consent]]></category>
      <category><![CDATA[paternalism]]></category>
      <category><![CDATA[shared decision]]></category>
      <category><![CDATA[patient partner]]></category>
      <category><![CDATA[peer helpers]]></category>
      <category><![CDATA[medical information]]></category>
      <category><![CDATA[medical mediation]]></category>
      <category><![CDATA[médiation médicale]]></category>
      <category><![CDATA[secret médical]]></category>
      <category><![CDATA[consentement]]></category>
      <category><![CDATA[paternalisme]]></category>
      <category><![CDATA[décision partagée]]></category>
      <category><![CDATA[patient partenaire]]></category>
      <category><![CDATA[pairs-aidants]]></category>
      <category><![CDATA[information médicale]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Lunel, Alexandre</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Démocratie et engagement en santé</title>
      <description><![CDATA[After strong social mobilization in France, the States General of Health met in 1998 and 1999 to come up with a law consecrating health democracy. Extended to democracy in health, it is based on the proclamation of individual rights and methods of representation of users of the health system in regulatory bodies reserved for approved associations. This prospect has had the effect of leaving aside the participation of all in social and medico-social care and support, on the one hand, and in public debate, on the other. It is in this context that ascientific recommendation from the Haute Autorité de Santé outlines the prospects for commitment to health for all, in a participatory approach with all stakeholders in the health system.]]></description>
      <pubDate>Sat, 01 May 2021 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14144</link>
      <guid>https://doi.org/10.46298/pspa.14144</guid>
      <author>Christian, Saoût</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[health democracy]]></category>
      <category><![CDATA[representation]]></category>
      <category><![CDATA[participation]]></category>
      <category><![CDATA[commitment]]></category>
      <category><![CDATA[démocratie sanitaire]]></category>
      <category><![CDATA[représentation]]></category>
      <category><![CDATA[participation]]></category>
      <category><![CDATA[engagement]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Christian, Saoût</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>From a context of patient care partnership possible for each patient, to the professionalization of patients for the general interest</title>
      <description><![CDATA[One of the manifestations of the power of patients, relatives and citizens to act concerning their health and participation in the general interest that more and more of them over time is now recognized by some authors as asocial fact, by others like the blockbuster of the 21st century, is noted by the number of publications on the subject at the global level because produced in an anthropogenic way. The aim of this article is first to describe the contours of what has developed in terms of patient postures and qualifications in recent decades before proposing the lines of research that appear necessary to frame and promote the development of what has been recommended by the World Health Organization for more than three decades.]]></description>
      <pubDate>Sat, 01 May 2021 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14145</link>
      <guid>https://doi.org/10.46298/pspa.14145</guid>
      <author>Flora, Luigi</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[patient partnership]]></category>
      <category><![CDATA[partner patient]]></category>
      <category><![CDATA[patient trainer]]></category>
      <category><![CDATA[health democracy]]></category>
      <category><![CDATA[experiential knowledge]]></category>
      <category><![CDATA[partenariat patient]]></category>
      <category><![CDATA[patient partenaire]]></category>
      <category><![CDATA[patient formateur]]></category>
      <category><![CDATA[démocratie en santé]]></category>
      <category><![CDATA[savoirs expérientiels]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Flora, Luigi</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>Co-construction between users and professionals in research and care</title>
      <description><![CDATA[This article explores the changes currently underway in the field of mental health. We historically explore the metamorphoses since the second half of the 20th century regarding a new conception of mental disorders. Thus, we come back to the transformation of patient status induced by these new approaches. These new paradigms influence both the legal tool and the practices of care and research. In this way, we question this evolution in order to understand what it could tend towards in the future. Finally, to support these many changes which tend towards a balance between users and professionals, we propose to think about the conception of a mixed knowledge that can be used by both professionals and users.]]></description>
      <pubDate>Sat, 01 May 2021 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14146</link>
      <guid>https://doi.org/10.46298/pspa.14146</guid>
      <author>Dupuis, Matthieu</author>
      <author>Castillo, Marie Carmen</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[recovery]]></category>
      <category><![CDATA[co-construction]]></category>
      <category><![CDATA[experiential knowledge]]></category>
      <category><![CDATA[empowerment]]></category>
      <category><![CDATA[rétablissement]]></category>
      <category><![CDATA[co-construction]]></category>
      <category><![CDATA[savoir expérientiel]]></category>
      <category><![CDATA[empowerment]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Dupuis, Matthieu</dc:creator>
      <dc:creator>Castillo, Marie Carmen</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
    <item>
      <title>The Advance Care Project: A first step for the network towards partnership between patients and health professionals</title>
      <description><![CDATA[En 2017, le Réseau Santé Région Lausanne (RSRL) a commencé à travailler sur le Projet de soins anticipé, inspiré des Niveaux de soins québécois et de l’Advance Care Planning. Après un état des lieux réalisé en 2018, le RSRL a lancé en novembre 2019 un test auprès d’une vingtaine de patient-e-s dans plusieurs milieux de soins. Approuvé par la Commission cantonale d’éthique de la recherche, le projet est conduit en collaboration avec la Chaire de soins palliatifs gériatriques du Centre Hospitalo-Universitaire du Canton de Vaud, Lausanne, soutenu par les trois autres Réseaux du Canton et par la Direction générale de la santé.]]></description>
      <pubDate>Mon, 06 Apr 2020 00:00:00 +0000</pubDate>
      <link>https://doi.org/10.46298/pspa.14138</link>
      <guid>https://doi.org/10.46298/pspa.14138</guid>
      <author>Anhorn, Philippe</author>
      <author>Chinet, Mathilde</author>
      <author>Devaux, Lila</author>
      <author>Reber, Robin</author>
      <author>Nicolas, France</author>
      <category><![CDATA[Le Partenariat de soin avec le patient]]></category>
      <category><![CDATA[Advance Care Planning (ACP)]]></category>
      <category><![CDATA[anticipation]]></category>
      <category><![CDATA[autodétermination]]></category>
      <category><![CDATA[partenariat]]></category>
      <category><![CDATA[patient-partenaire]]></category>
      <category><![CDATA[planification anticipée du projet thérapeutique (PAPT)]]></category>
      <category><![CDATA[projet de soins anticipé]]></category>
      <category><![CDATA[[SHS]Humanities and Social Sciences]]></category>
      <dc:creator>Anhorn, Philippe</dc:creator>
      <dc:creator>Chinet, Mathilde</dc:creator>
      <dc:creator>Devaux, Lila</dc:creator>
      <dc:creator>Reber, Robin</dc:creator>
      <dc:creator>Nicolas, France</dc:creator>
      <slash:comments>0</slash:comments>
    </item>
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